Showing posts with label club foot. Show all posts
Showing posts with label club foot. Show all posts

Wednesday, August 05, 2009

Training for the Pikes Peak Marathon

For the past two years I ran in the Pikes Peak Ascent, and this year I decided to up the ante and race twice as far in the full Pikes Peak Marathon, which is 26.2 miles from Manitou Springs to the 14,115 foot summit of Pikes and back down again, with an elevation change of 7,815 vertical feet each direction. I've been logging about 40 miles of running per week plus a few hours of biking, and I think I'm ready. This weekend will be my last long training run before the race on August 16. I've turned the race into a fundraiser again this year. I'm raising money to help treat kids around the world with club foot deformity. I hope to raise $1000 for the Ponseti International Association for the Advancement of Clubfoot Treatment. Dr. Ponseti is an amazing 94-year-old doctor who pioneered the non-surgical technique and is still practicing medicine today. You can donate to the case at this link.

Monday, July 28, 2008

Elizabeth's bedtime routine

Although her feet are straight now and she can walk just fine, Elizabeth will need to wear her foot brace at nighttime until she is at least 4 years old to prevent a relapse. The brace is such a part of her routine that she doesn't mind it at all. Here she is in her PJs, with the brace, and sporting a new hairdo courtesy of mommy.


Sunday, July 27, 2008

Training for the Pikes Peak Ascent

I'm a glutton for punishment, or so it might seem. I'm running in the Pikes Peak Ascent again this year on August 16. It's a trail race of 13.3 miles and -- more significantly -- 7815 feet of vertical gain. My goal is to finish in under 3 hours, and beat my time from last year (3:05:03). In conjunction with my efforts, I'll once again be collecting donations for the Ponseti International Association for the Advancement of Clubfoot Treatment - so they can help more children with club foot birth defects. If you'd like to make a donation, click here.

Sunday, March 02, 2008

Walking, talking machine

It's been a while since I've posted an update on Elizabeth. A while back I posted a short video of some of her first, wobbly steps. A few months later, she's walking like a pro, and starting to talk, too. She's come a long way since she started the Ponseti treatment for her club feet!


Tuesday, October 30, 2007

First steps

Elizabeth has taken her first wobbly steps! After spending the first year of her life with bilateral club foot, 3 months in full-leg casts, and then wearing the Ponseti brace most of the day since then, she's doing great!


Sunday, October 14, 2007

Help kids with club foot

For anyone who would like to help the 150,000 kids born with club foot each year, I now have a personalized page where you can donate to the Ponseti International Association for the Advancement of Clubfoot Treatment.

I recently saw video of a Phillipino girl whose bilateral clubfoot went untreated until she was 10 years old. The Ponseti method corrected her feet without surgery, and without the high expense and likelihood of pain that accompanies it.

When we consulted with doctors at the Children's hospital in Denver, they told us that Elizabeth , at 1 year old, was too old for the Ponseti method and would need surgery. This is all too common with doctors in the US since they either don't know the Ponseti method, or they know they can make a lot more money performing surgery.

Thursday, October 11, 2007

Brace relief

Elizabeth visited her doctor earlier this week and got some good news. Her feet look fine, and she can now wear her brace only 12-14 hours per day (overnight and during naps) instead of 18 hours per day. The extra hours of freedom every day should help her learn to stand a walk pretty soon.

Saturday, September 29, 2007

Six feet

What do you do if you have 3 children with bilateral clubfoot? Take them to Dr. Ponseti, and write a web site about the experience.

Sunday, September 16, 2007

New Ponseti web site

There is a new web site for the Ponseti International Association. According to their estimates, it costs only $100 to treat a child in a developing country using the Ponseti method. Thanks again to my friends and family who donated enough to treat 9 children!

Almost standing

Elizabeth is almost standing on her own now. She can easily pull herself up and enjoys standing while holding onto something. She'll step sideways around a table or chair, as long as she can hold on. She is still wearing her brace about 18 hours per day, and our doctor has recommended that we spend 5 minutes each day stretching her right ankle. I don't think it hurts her - it may be a bit uncomfortable, but she hates it anyway. Being immobile for 5 minutes may be the worst part.

Thursday, August 30, 2007

Ponseti Video

I found this video showing Dr. Ponseti receiving an award from the Children's Miracle Network. It has some good footage of his work, as well as his acceptance speech where he gives a summary of his long medical career. The most unfortunate aspect of his work is that not enough doctors are learning his technique. There is only 1 doctor in all of Colorado trained by Ponseti, and few American doctors are learning it. There seems to be more interest from doctors overseas. It would be sad if Americans had to travel to overseas to treat their childrens' clubfoot.

Sunday, August 19, 2007

69th place on Pikes Peak

I finished the Pikes Peak Ascent on Saturday morning, and thanks to generous donations from friends and family, I raised about $900 for the Ponseti International Association for the Advancement of Clubfoot Treatment ! I can assure you it was the toughest 900 bucks I ever made.

I beat my personal goal by about 1 minute, finishing the 13.3 miles and 7,815 vertical feet in 3:05:03.

Some stats
I finished in 69th place overall (out of 1647 finishers), and 63rd place (out of 1162) among male runners. That's close to the top 4th percentile overall, and in the top 6th percentile for the men. In the 35-to-39-year-old-male category, I was 12th out of 189, which is in the top 7th percentile.

The 1st place finisher was Matt Carpenter (a perennial favorite) at 2:12:56.

Results from the race are posted here.

Play by play
Mile 1: a relatively easy stroll up a gently sloped & paved road through Manitou Springs.

Miles 2-5: "The W's" at the foot of the Barr trail. So-named for the way the dozens of switchbacks look on a map as they climb a steep 2500 feet or so above Manitou. This is a single track trail crowded with runners, and little room to pass. At about mile 3, I started tracking my position - the number of people I passed, the number who passed me. By mile 4, the pack thinned out enough that passing wasn't a problem anymore. In most races, mile markers tell you how far you've run so far. In the Ascent, they did it backwards - they tell you how much distance to the finish line. Its was rather disheartening to see the "11 miles to finish" sign when I was already tired and gasping for air.

Miles 6-9: Finally, a break from the steeps. Still uphill, for sure - there are no significant flat sections on the trail, much less downhill, but it's a welcome break from the W's. Beautiful trail, too. It'd be nice to come back sometime when I could enjoy the scenery.

Mile 10: "We're baaaack!" (the steeps and switchbacks, that is). This is the last mile of tree cover. It's also where I got passed by a skirt. Literally. A woman wearing a pink running skirt passed me here.

Miles 11-12: You break through tree line at 11,800 feet of elevation, right at the "3 miles left" sign. Staring down at me is the east face of Pikes Peak - 2,300 vertical feet to go! At this point my heart is literally in pain from pumping so hard. Except for the top few dozen runners, no one is actually running at this point in the race. It's a fast hike at best. The trail gets really steep again, but now it's also more rugged and uneven, with big rock steps to boot. This is a high-altitude, voluntary version of the Bataan death march, with hundreds of stick-thin runners trudging forward in pain.

Mile 13: No rest for the weary. They saved the steepest, rockiest terrain for last - the Golden Steps! For a few brief moments here and there, I feel light headed, and the pain in my chest (that would be my heart) isn't letting up. I pass a few people who've run out of gas, and a few others who reserved some juice for the end pass by me. I think I improved my overall position by 1 place since I started keeping track about 10 miles ago. I crossed the finish line at 3:05:03, a minute faster than my personal goal.

If that doesn't sound fun, then just imagine turning around and running back down the same trail again. That's what hundreds of people did on Sunday morning for the Pikes Peak marathon. About 70 ridiculously fit and insane runners did what's known as "The Double" - running the Ascent on Saturday and then the full marathon the very next day. And you thought I was crazy!

Monday, August 06, 2007

Less than 2 weeks til race day

It's less than 2 weeks until I race in the Pikes Peak Ascent. I've turned the race into a fundraiser for the Ponseti Foundation, which seeks to improve treatment for clubfoot. So far I've raised about $500 in donations, and I'm hoping to double that amount. I've been training hard, including an adventurous 4 hour solo run up a trail on Mt. Evans. After getting lost and going the wrong direction for several miles, the seldom-used trail got progressively more steep and rocky, then turned into nothing more than alpine meadow with rock cairns to mark the way, then alpine swamp (yes, my feet were soaked), before reaching summit lake at 12,000 feet. From there I kept marching up the road toward the summit. Amy dropped me off at the trailhead (approximately 9000 feet elevation) in the morning, and picked me up near the summit 4 hours later.

Many thanks to all my friends and family who have supported the cause. If you'd like to support the cause, click here for more info.

Tuesday, July 17, 2007

Running for a good cause

On August 18, I'll be running the Pikes Peak Ascent to raise money for the Ponseti International Association for the Advancement of Clubfoot Treatment. You can support this great cause by making a donation to the association in honor of my masochistic endeavor - racing 13.32 miles and 7,815 vertical feet! Information on how to donate is below, but first, here is some info about club foot.

Club foot is one of the most common birth defects, affecting approximately 150,000 children each year. Although the condition is treatable, many children in poor countries don't receive treatment and are disabled for life. Dr. Ignacio Ponseti pioneered a non-surgical method of correcting club foot, and this association is committed to advancing the treatment of children with clubfoot deformity through education, improved care, and research.

My daughter Elizabeth was born with club feet, and thanks to Dr. Ponseti, she is well on the way to a full recovery. Some day, I hope she can hike - or even run - up Pikes Peak with me.

More about the race:
The Pikes Peak Ascent is 13.32 miles long and climbs 7,815 vertical feet (1.5 vertical miles!), ending at the 14,115 foot summit of Pikes Peak. If you're curious to see the race route, here is a link to a very cool Google Earth map showing the trail. Here is how the high-altitude portion of the course is described on the race's web site:

There’s a reason trees don’t bother growing above 12,000' on Pikes Peak. They can’t! Makes one wonder if trees are smarter than runners. Above treeline most runners take 30 minutes or more, some much more, just to cover a mile. What little air remains can’t satisfy the endless stream of zombies hoping only to survive their next step—a death march right out of a scene from Dawn of the Dead. Adding insult to injury, it might start to snow!
My personal goal is to finish in 3 hours, 6 minutes, which would put me in the top 7% of finishers with an average pace of about 14 minutes per mile.

I would appreciate your generous donation! Since I don't have any other way to know how much money my friends will raise, I would appreciate it if you would leave a comment on this blog or send an email telling me how much you donated.

You can make a secure online donation at this link to the Ponseti International Association for the Advancement of Clubfoot Treatment. If you'd rather send a check, please make it payable to: Univ. of Iowa - Ponseti Fund and send it here:

Ponseti Fund for Advancement of Clubfoot Treatment
c/o The University of Iowa Foundation
P.O. Box 4550
Iowa City, IA 52244-4550

I very much appreciate your support in raising money for this great cause!

Sunday, July 15, 2007

No more casts

Elizabeth is out of her casts now! We took the casts off both of her legs on Saturday morning after about 14 weeks of casts. She sat in the bathtub for a while to soften the plaster, and then Amy cut through with an old butter knife, which takes a long time, but it means we don't have to worry too much about cutting her. Her feet look almost normal now! Not only that, but now we can give her proper baths and let her play in the pool.

She still has a long road of treatment ahead of here, though. For the next 3 months, she'll be wearing a specially designed brace and shoes for 18 hours per day, and then she'll wear a similar brace at nighttime until she is about 4 years old. These photos show her feet before the casts, after the casts, and with her new brace contraption.

Above: before the casts


Above: after the Ponseti treatment


Above: the new-fangled brace contraption. Doesn't she look thrilled???

Thursday, June 14, 2007

Dr. Ponseti


We met with Dr. Ponseti yesterday and from all the glowing reports I’d heard about him I practically expected him to walk on water. He didn’t do this for us, but I can see a definite improvement in the position of Elizabeth’s foot in the cast. He expects to change the cast on Monday and then have a tenotomy (a procedure to improve the up/down motion of the foot) performed next Friday. After this procedure we will be able to return home.

There are at least 4 families staying in the Ronald McDonald House that are here to see Dr. Ponseti; one from Canada, one from the Domenican Republic, and one from Mississippi. Add in our Colorado family with the Chinese born baby and it’s quite a crew.

The local media was at the hospital doing a piece on Dr. Ponseti yesterday and we were asked to sign a media waiver and all that good stuff. I doubt we will make it on TV though since Elizabeth screamed like a banshee through most of the visit. Everybody loves a 93 year old doctor curing the world’s children, but nobody wants to listen to my daughter scream.

I’ve heard that crying during the casting is pretty unusual and I believe it. Elizabeth cries whenever I touch her right foot – even if it is just to play “This little piggy”. I know that this does not cause her pain and I’ve felt what the doctors do and I’m sure it is not painful either. Uncomfortable, maybe, but not painful.

Iowa City is a pleasant enough town. We went to a concert in the park this evening and had a good time. The town has a nice everyone-knows-everyone feel and the parks are really nice. We also went to the children’s museum today and Andrew had a lot of fun there.

Monday, June 11, 2007

Off to Iowa to see Dr. Ponseti

After 6 weeks of casts, Elizabeth's right foot, which was more deformed than the left, isn't making the progress we hoped for with her club foot treatment using the Ponseti method. Her doctor, Daniel Hatch, recommended that we visit the man himself: Dr. Ignacio Ponseti, who pioneered the method decades ago. The good doc is 93 years old - that's right - ninety three! And still practicing medicine. Now there's someone who loves his job. He does have another doctor working with him now, at least.

The good news is that the expert doctor is available to work this us. The bad news is that he's in Iowa. Iowa City in fact. Amy, her mom, Andrew, and Liz all loaded into the family wagon this afternoon and headed east. That's 15 hours of driving with 2 kids in the car, and no scenery worth seeing. I won't be surprised if the 2 adults need some professional help after they arrive, too. Fortunately, Iowa City has more physicians per capita than any city in the US.

The clan will probably be in Iowa for a few weeks, and I'll be living a bachelor's life back home.

Saturday, May 05, 2007

Going mobile with two casts

Elizabeth is now wearing her 4th pair of casts in the series of about 8 pairs of casts she'll need to correct her bilateral club foot. The casts aren't painful, and don't seem to bother her at all. She gets around pretty well, although she can't quite crawl. The casts are thigh-high so they won't slip out of position so easily, but despite that, her right cast has slipped out of the correct position in each of the first 4 weeks. Her right foot is more bent than the left, so the foot hasn't been pulled up as much yet, which makes it easier for this cast to slip down.

This video shows just how mobile she is despite the fact that she can't bend her knees or ankles.


Saturday, April 14, 2007

Cast number two

Elizabeth got her 2nd pair of casts on Wednesday. The process starts at home, where Amy soaks her old casts off using a warm bath and vinegar. The plaster soaks off in only about 20 minutes. So far there is no noticeable improvement in her foot position, but it's not expected to be noticeable until the 3rd or 4th cast.

Then it's an hour and 15 minute drive to Greeley. Yep, Greeley. Dr. Hatch is the only Ponseti-trained doctor we could find in the whole state, but it's worth the drive.

At the doctor's office, Elizabeth sits in Amy's lap while the doctor and 2 nurses put the casts on. It takes about 30 minutes, and Elizabeth spends about half of that screaming. You can't blame her for that, I suppose. Fortunately, Amy is able to keep her content part of the time with a bottle and a toy. One week down, seven-to-nine weeks to go!

Wednesday, April 04, 2007

Cast number one

Elizabeth had her first visit to Dr. Daniel Hatch yesterday to start her club foot treatment using the Ponseti method. She now has thigh-high casts on both legs. For at least the next 8 weeks, she'll be visiting the doctor weekly to gradually move her feet closer to the normal position, getting a new pair of casts each time.


They look horribly uncomfortable, but fortunately they don't seem to bother her. The casting process evoked a fit of ear-piercing screams, though, and she was having a bad before it even started; she was running a fever, acting fussy, and obviously not feeling very well. Poor girl! THe good is that she has gotten over that trauma and today she was in a much better mood.

We may have seen her first fit of jealousy today, though. As Liz sat watching mommy, Andrew came and sat in mommy's lap, and Elizabeth instantly burst into a fit of tears. How dare he sit in her mom's lap!